Univ. of Washington - Marfan Syndrome - The Department of Orthopaedics is actively involved in quality patient care, teaching, and research concerning bone and joint problems. Special areas of expertise include foot and ankle, hand and microvascular, hip and knee, arthritis, sports medicine.
Marfan Association UK - The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
Life and Issues of Marfan's Syndrome - This page outlines my own experience with Marfan Syndrome, describes some of the pathology, and gives a bit of advice for anyone dealing with it.
A Diary about Marfan's - Marfan's patients diary of the diseases events in her life. Includes a list of links.