FRAXA - Fragile X Research Foundation - Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
Living with Fragile X - A site on Fragile X writen by the parents of 3 children with full mutations of Fragile X.
Conquer Fragile X, Inc. - Fragile X is the leading inherited cause of mental retardation. This site creates a virtual research center in Israel for the research and cure of Fragile X.
Carolina Fragile X Project - A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.