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- FD HOPE Home Page - Resource for families, researchers, and clinicians interested in FD. Also known as riley-day syndrome.
- The American Journal of Human Genetics - In the March issue of The American Journal of Human Genetics,
- NORD: Familial Dysautonomia - National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases.
- Familial Dysautonomia - A definition of familial dysautonomia, its inheritance patterns and symptoms.
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