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- NINDS: Coffin Lowry Syndrome - Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
- Coffin-Lowry syndrome (CLS) - A table showing the synonyms, a summary and major features.
- NORD: Coffin Lowry Syndrome - National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases.
- Welcome - Information about the organization as well as CLS. Includes FAQs, news, links, parent and foundation contact details.

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